Respiratory Interstitial Lung Disease (ILD) Nurse Specialist

University Hospitals Sussex NHS Foundation Trust
£43,742 to £50,056 a year per annum pro rata
Closing date
21 Jun 2023

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Nurse, Adult nurse, Respiratory nurse
Band 7
Contract Type
Full Time
We are looking to recruit an experienced nurse to join our Respiratory team as a Clinical Nurse Specialist in Interstitial Lung Disease to work in the support and care delivery of this patient group. The team require a nurse who can work autonomously in a hospital and clinic setting and have excellent communication skills in order to liaise effectively with the multidisciplinary teams. Experience in Respiratory medicine would be an advantage but is not essential as Internal and external training will be provided.

What is important is your enthusiasm for the role,desire to develop and ability to provide high standards of patient care.

Main duties of the job

The post holder will facilitate and manage the provision of high-quality nursing care to patients with interstitial lung disease (ILD) in order to provide optimum health and support for patients, their families and/or carers.

They will utilise skills of leadership and advanced clinical expertise to ensure a seamless service for patients, carers and staff and provide advice, education and support from diagnosis to end of life care. They will work collaboratively with primary, community, and secondary health care professionals, supporting individuals attending the Trust either as inpatients or outpatients and ensure smooth transitions of care into the community setting.

Be an autonomous practitioner and carry out advanced assessment and treatment of a specialist caseload of patients with Interstitial Lung Disease.

To be responsible for clinical update and action (with support of an administrator) to a weekly multi professional ILD MDT.

To maintain patient related documentation according to UHSussex NHS Trust and NMC standards, Code of Conduct

To provide specialist advice to other professionals both within the Trust and community

To adhere to Trust policies and Professional bodies Code of Conduct and be guided by National Standards where they exist.

They will be actively involved in education, audit and research and contribute to the development of the ILD service

About us

Join us atUHSussex, every day is different, you can be the change, better never stops

At UHSussex we're proud to be at the heart of the NHS. As one of the UK's largest acute Trusts, we're a leading example of the excellence, the ambition and the values that have embodied the NHS for over 70 years.

Improving lives: We are a vibrant and inclusive organisation, with hardworking, talented and dedicated individuals, who work together towards a common goal, to always put our Patient First. Our mission is summed up by our 'where better never stops' motto and no matter the role at UHSussex, you will play a part in driving us forwards and in improving the lives of patients across Sussex. We treat our patients and staff with the same compassion and empathy we expect for ourselves. We're here for them when they need us, and we go above and beyond to meet their needs. This can be seen in our wellbeing programme for staff which is extensive and designed to support you when you need it because we know that to look after others we must first look after ourselves.

Build a career with us: As a university trust and a leader in healthcare research, we value learning, teaching and training so that we can be the best that we can be. From the moment you start with us and throughout your career we will help you to grow and develop. We hope that in choosing UHSussex you are choosing a long and happy career where you will be able to see the difference you make and feel valued for all that you do.

Job description

Job responsibilities


Due to the frequently distressing needs of complex patients and their families this role requires significant psychological and emotional investment and mental effort to include communicating bad news, counselling patients regarding being turned down for transplant consideration and supporting and counselling dying patients and their carers

The ability and effort to build therapeutic patient relationships in challenging circumstances concentrating on highly emotive patient assessments

Attention to details required when analysing clinical tests and results

Managing fluctuating patient caseload with unpredictable levels of patient referral and requests for specialist advice within tight time constraints

Maintaining collaborative working with diverse groups

Maintaining patient confidentiality in the ward/outpatient environment when breaking bad news

Providing support for colleagues facing challenging patient care issues

Dealing with frequent interruptions throughout the day, from radio-pager, telephone, patients, relatives and other health care professionals

Working in a shared office resulting in distractions as a result of frequent conversation and telephone interruptions

Exposure to unpleasant working conditions eg dust, dirt, pets, smoke

Daily use of computer

On occasions potential to deal with vulnerable or aggressive patients / carers

To adapt communication with individuals who have a range of communication difficulties, including dementia, dysphasia, deafness and individuals for whom English is a second language and ensure all members of the team do likewise

Service Delivery and Improvement

To take an active role in the Regional and National Clinical Interest Groups.

To ensure the integration of evidence-based practice within team.

To evaluate service provision and assist in the planning and development of service strategy with the Respiratory Pathway and Medicine Divisional Lead.

To be responsible for proposing and implementing local team policies and ensuring they are reviewed and amended as required.

People Management and Development

Demonstrate effective leadership at all times to other health professionals in the management of patients with ILD

To be involved in organisation and audit of the ILD service and be an active member of the ILD multidisciplinary team meeting

Communicate effectively to health professionals and health commissioners the benefits of a patient-centred service for patients and health economics

To be responsible for effectively planning and time management to meet the needs of the service

Liaise with the multi-disciplinary team to investigate accidents, incidents and complaints relating to the team and report accordingly to trust policies and guidelines

Communicate and record all information in accordance with Trust policies and Data Protection Act

To participate in potential annual leave cross-cover and weekend rota as required

Demonstrate effective leadership at all times to other health professionals in the management of patients with ILD

To be involved in organisation and audit of the ILD service and be an active member of the ILD multidisciplinary team meeting

To actively contribute to departmental, service and clinical governance meetings with ideas and proposals regarding service development and delivery

Be able to constructively engage professionals at all levels as an advocate for patient wishes and preferences in managing their condition

Communicate effectively to health professionals and health commissioners the benefits of a patient-centred service for patients and health economics

Liaise with the multi-disciplinary team to investigate incidents and complaints relating to the team and report accordingly to trust policies and guidelines

Communicate and record all information in accordance with Trust policies and Data Protection Act

Patient Care Delivery

To develop specialist knowledge in ILD care

To lead best practice in nursing care of patients with ILD in a variety of settings to include acute and chronic disease management

Develop a good working knowledge of relevant medications and their side effects. Would support non-medical prescribing application if desired.

To assist in co-ordination of patient care throughout the patient pathway, collaborate with medical colleagues in ensuring appropriate investigations are performed and that the patient is fully informed and understands the purpose for these

Act as patients advocate and counsel when informed discussion may lead to choices being made concerning treatment options or quality of life issues

To collaborate with other professionals and services in both secondary and primary care to achieve a seamless service with effective communication between the service, regional hospitals and community teams

Provide a telephone support service for patients and health care professionals, communicating with other services as indicated

To act as an autonomous practitioner and provide nurse led clinics, request, perform and analyse tests.

Demonstrate advanced nursing practices relevant to the area of expertise eg six minute walking test.

Develop a good working knowledge of anti-fibrotic and immunosuppressant drugs, including their side effects

To be responsible for blood test monitoring of patients on immunosuppressant medication

To provide education for patients commencing anti-fibrotic and immunosuppressant medication and to provide ongoing support to help adherence and reduce risk

Review inpatients and facilitate discharge plans to ensure safe, appropriate discharge, collaboration with community teams and support services in the community setting, referring patients for ambulatory and home oxygen assessments as appropriate

Support patients with advance care planning, arrange review and reassessment with palliative care services as the disease advances, to help to enable the patient to remain in their own home for as long as possible and achieve preferred place of death for patients.

Actively promote and support the patient/carer ILD Support Group

Active participation in research and/or clinical evaluation and audit

Computer literate, able to use databases and other relevant programmes

Ensure standards and records are maintained in accordance with the Trust and NMC

Demonstrate ability to act independently, use initiative and be accountable for own actions in the hospital setting

Ability to apply excellent analytical and judgement skills to interpret and compare a range of options for individualised patient care

Demonstrate the ability to educate and train other health professionals, to motivate and enthuse others and work across professional boundaries

Demonstrate excellent communication and interpersonal skills and show the ability to influence and negotiate

Ability to present relevant written and visual educational material

Flexibility and adaptability to meet the needs of a changing service

To raise the profile of interstitial lung disease in the trust, locally and nationally and actively participate in the promotion of ILD health

To work collaboratively within the team of respiratory specialist nurses

Please refer to the attached Job Description and Person Specification for full details

Person Specification

band 6 experience


  • Previous Band 6 experience,
  • Evidence of interest in respiratory medicine
  • Evidence of on going professional developement


  • Previous experience in respiratory medicine
  • evidence of achieved professional development
  • Enthusiasm towards new role

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship

Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab) .

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab) .

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details

Employer name

University Hospitals Sussex NHS Foundation Trust (279)

Any attachments will be accessible after you click to apply.


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