This job has expired

Band 6 Children's Clinical Nurse Specialist - Neurometabolic Diseases

Birmingham Community Healthcare NHS Foundation Trust
£35,392 to £42,618 a year per annum
Closing date
1 Jun 2023

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Job summary

An exciting opportunity has arisen for a Clinical Nurse Specialist in neurometabolic disease to work in the Children's Palliative Care team.

The post holder will be expert in their care delivery and will provide effective clinical and professional leadership and support the nursing staff within the Children's Palliative Care Team in the neurometabolic nurse specialist role.

The post holder must have a vision and passion to optimise a high quality of care holding significant knowledge and experience within paediatric neurometabolic diagnosis.

Main duties of the job

The post holder will be supporting all children and young people referred to the team. The specialist role will support the palliative care team in parallel planning and meeting the palliative care needs and will be an ambassadorial role when liaising with all professionals in the child/young person's care, championing the key worker role and care of the child and their family.

The team consists of a specialist palliative care consultant, clinical lead, senior palliative care nurses, senior family support worker and nurse associates. We work very closely with the Children's Community Nursing and Rapid Response Teams and the acute settings to ensure a high standard of care is offered to children/young people and their families referred to the team.

The team support children and young people and their families with all aspects of care including end of life and bereavement support. The team offer a 24/7 service which enables timely symptom management and offers family choice around care for place of death.

Full time/part time/flexible hours of working will be considered at interview.

We would encourage anyone considering applying for this post to visit the team prior to application and interview and to discuss the role with Rachael Williams Clinical Lead Children's Palliative Care and Rapid Response, or 07974 785 098 or Joanna Sargeant, Team Leader,, 07701 283777.

About us

Be Part of Our Team...

Birmingham Community Healthcare NHS Foundation Trust (BCHC) has more than 5000 staff working across Birmingham and the West Midlands in a wide range of community nursing and specialist healthcare roles. BCHC delivers over 100 clinical services, in people's homes, health centres, clinics and inpatient facilities. We deliver a wide range of services for children, young people, parents and families as well as adults and community services, two community hospitals, services for people with learning disabilities, the internationally recognised West Midlands Rehabilitation Centre and one of Europe's leading Dental Hospitals and School of Dentistry. We deliver all of this with a commitment to integrated, personalised care that is rooted in our local communities. We have an ambition to deliver outstanding, integrated care as one of the key NHS providers in the West Midlands.

If you want to 'Be Part of Our Team' and work with a Foundation Trust which is continuously striving for better care and healthier communities, we want to hear from you.

Job description

Job responsibilities

  • Work in accordance with NMC Code of Professional Practice and Scope of Professional Practice. Professionally and legally accountable and responsible for all activities.
  • Manage a caseload of predominately children and young people with paediatric neurometabolic diagnosis.
  • Holistically assess the situation and needs of children with life limiting/threatening conditions inclusive of family needs.
  • Provide nursing interventions to life limited children and those under the PC team in their own homes e.g. management of CVL devices, enteral feeding management, symptom management.
  • Provide nursing and psychological support to parents of life threatened/ limited children in their own homes.
  • Ensure the delivery of care is of the highest standard taking into account the environment in which the care is being delivered.
  • Work in partnership with children, families and carers, to provide optimum outcomes for each child by acknowledging individual preferences and lifestyles.
  • Recognise situations which may be detrimental to a childs wellbeing and deal with individual situations according to organisational and local agency policies, for example, child protection issues, e.g. initiation of fCAF referral to Social Care & Health services.
  • Review, discuss and facilitate fulfilment of Advanced Care Plans for children and families with life limiting/threatening conditions.
  • To be aware of all policies/guidelines pertinent to working practice and to keep up to date with changes to ensure that practice is evidence based.
  • To maintain confidentiality of children and their families at all times.
  • Work autonomously and as part of a team to deliver care.
  • To promote and contribute to effective team working.
  • To participate in the on-call rota to provide telephone advice to families across both CCN and Palliative caseloads and then conduct home visits for children at end of life.
  • Manage clinical risk within own caseload.
  • To visit children and their families at the end stages of their childs life and/or to meet the needs of the service
  • To maintain a non-judgmental approach when working with the children and their families.
  • Initiate, organise and liaise with the PC team leader and other service providers to address the needs of life limited children and their families.
  • Liaise with the Childrens Palliative Care Clinical Lead to holistically support families and carers responding to individual needs.
  • Liaise with other professionals e.g. social workers, medical and nursing staff both internally and externally with those involved with life limited children and their families in a key worker capacity in respect of health and wellbeing needs of child.
  • Access team reflection/debriefs, and staff support as required to manage the emotional impact of the role.
  • Plan and participate in teaching packages to families and carers to ensure effective care is delivered safely.
  • Travel to visits within patient homes throughout Birmingham and adhere to BCHC lone working policy.
  • Undertake appropriate risk assessments to ensure safety during visits ensuring effective liaison with colleagues to ensure their safety especially during unsociable hours.
  • Work autonomously and act independently working within BCHC Policy, procedures and guidelines.
  • Promote and support effective discharge planning to avoid prolonged hospital admission.
  • Support families in a variety of settings in breaking bad news and in challenging situations such as end of life care.
  • Following appropriate nurse prescribing training, assess, implement, and evaluate an episode of care, prescribing appropriate treatment as required.
  • Participate in developing new service criteria and standards formulating policies in partnership with relevant personnel e.g. medical acute units and voluntary agencies.
  • Initiate, plan and facilitate multi-disciplinary discharge and care planning meetings, inviting professionals within the organisation and outside agencies.
  • Contribute towards and deliver presentation materials for promoting the Palliative Care service to other professional groups within and outside the organisation.
  • Produce duty and on-call rotas to cover a 24 hour shift pattern.
  • Attend in house meetings as required to ensure effective communication and service delivery.
  • Advocate for children and their families with other professionals for access to services, including negotiation with housing/medical personnel regarding end-of-life plans/symptom control promoting the child and familys points of view.
  • Initiate and participate in research and audit relevant to development and delivery of the service.
  • Ensure that the team have access to resources to enable safe, effective care for life limited children including specialist equipment and consumables.
  • Support the Childrens Palliative Clinical Lead in development of palliative care services within Birmingham.
  • To delegate appropriately within the team ensuring safe service provision, whilst considering appropriate skill mix and care requirements.
  • In the absence of the team leader actively manage the service dealing with sickness and operational issues as they arise.
  • To maintain and continually update knowledge and skills in relation to the post.
  • To identify and undertake specific training to maintain skills in line with NMC Scope of Practice and development needs of the service.
  • Facilitate and participate in the provision of training regarding paediatric neurometabolic disease and palliative care for all grades of staff within and outside the service to ensure knowledge and skills are achieved to fulfil roles.
  • Value and utilise skills of other team members recognising personal/professional strengths and challenges sharing and learning new skills willingly.
  • Initiate, design and deliver teaching packages to all grades of staff, whilst also being willing to undertake further training to develop and enhance skills in relation to paediatric neurometabolic disease/Childrens Palliative Care.

  • Person Specification



    • RSCN/RN Child Branch
    • Specialist Children's Palliative Care qualification or evidence of equivalent experience
    • ENB 998 (Teaching & Assessing in Clinical Practice) or equivalent



    • Experience of working with children with life limiting/ threatening illnesses and end of life
    • Significant experience of working as a Children's Nurse either RSCN/RN Child

    Skills and knowledge


    • Ability to manage team on a day to day basis in the absence of the Team Leader/Children's Palliative Care Lead
    • Demonstrate knowledge relating to child protection issues and procedures
    • Evidence of assessment skills and use of nursing process and nurse models

    Any attachments will be accessible after you click to apply.


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